When my son Bryson was born, he seemed to be a healthy baby boy. But doctors soon confirmed our worst fears: Something was wrong with Bryson’s Brain.
Today I’m excited to share the first two episodes of Unlocking Bryson’s Brain, a new podcast series I’ve produced in partnership with the Canadian Broadcasting Corporation.
Unlocking Bryson’s Brain is an eight-part serialized story about my son Bryson who has a rare genetic condition that prevents him from walking or talking and keeps his brain locked at the developmental level of a 12-month-old. The podcast explores our family’s search, first for a diagnosis and then for a cure.
It’s partly a father’s memoir, and partly a medical mystery, where I explore topics such as new advances in medical science, the ethics of cure and what it’s like to be the parent of a child with a rare and debilitating disease.
The first two episodes of Unlocking Bryson’s Brain are now live! You can get them wherever you listen to podcasts.
Here are some of the links to listen and subscribe:
- Apple Podcasts: Listen here
- Spotify: Listen here
- Google Podcasts: Listen here
- CBC: Listen here: Listen here
As I say at the start of the first episode:
During this difficult time, I’m craving great storytelling podcasts that can help me escape. And I think you’ll find that in Unlocking Bryson’s Brain. But this series about searching for a cure for my son’s rare disease is also a microcosm of the discussions going on all around us about a life-changing illness, inadequate testing, funding priorities, the cutting edge of medical science, and the power of hope in a time of darkness.
After you listen to the first couple of episodes, leave a comment below. I would love to know what you think!