The Ethics of Cure

Cure is polarizing. For scientists and rare disease parents, it’s seen it as the holy grail. But in disability politics, it’s sometimes seen as an ablest concept. I speak with disability rights activist Eli Clare about finding the middle ground.

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Eli is a Vermont-based poet, speaker and activist who lives with cerebral palsy.

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  1. Hello…So my grandson was born 7/16/19 and after having seizures at a few months old, my daughter and her hubby had some concerns. Long story shorten Dreson was diagnosed with Grin1. Ive been googling and I see your handsome son Bryson has Grin1 also. I have so many questions as a grandmother. We definitely are seeking any information so that Dreson can live a happy life.. His 1st bday is approaching and my daughter is planning a celebration. Im trying to put together a information picture book out for the guests shes inviting and also have a Grin1 family join us. She lives in Charlotte. Do you know of a family that will be willing to come by and bond with out family. Which will become a support team for my daughter, Dreson and family? Thanking you in advance for any help. I hope Bryson is doing well..

  2. Thank you so much for reaching out! I hope your grandson is doing well. I think you have already been in contact with my colleague Denise Rehner about setting up a visitor for Dreson’s party? If you have any more questions, don’t hesitate to email me at

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